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The European voice for informal carers

Last call to answer and disseminate the InCARE survey: please help us collect a large number of contributions on attitudes, experiences, and expectations on long-term care!

The InCARE survey is open for a few more weeks only.  The aim of this survey is to understand how people view care for older people with support needs and how they assess long-term care systems. It is available in 8 languages: Albanian, Dutch, English,  French, German, Macedonian, Romanian, Spanish. As of now, we have 2924 responses, promising an interesting analysis. Many participants shared their personal experiences, illustrating the acute need to redesign long-term care provision:

“I would urgently need support as far as my parents are concerned.” (Woman 52, Austria)nd)

“It was very difficult to find quality help even if we paid.” (Woman, 62, France)

“It was terrible to witness just how much our older people are let down by lack of creative, adequate, and  in my opinion humane, care options.” (Woman, 46, Ireland)

Read more testimonials from the survey here.

You can help ensure as many people as possible are given the opportunity to express their views:

  • By filling out the survey here; This should take no more than 20 minutes of your time!
  • By disseminating the survey in your professional and personal network. Everyone is, or will be affected at some stage in their life by a need for long-term care support, and each contribution counts. You can simply share this link, or disseminate the survey via Twitter, or or FB.

More responses would also allow a more refined approach to the differences between countries.

Findings from this study will be used to raise awareness of the challenges faced by older people with care needs and their families, to advocate for policies that can support them, and to help design better support systems for older people, their families, and communities.

Ensuring all those who need it have access to high-quality, affordable long-term care, in particular home-care and community-based services, is a major challenge throughout Europe and at the global level. Policy debates are ongoing on how to shape long-term care systems in the future: it is essential that people are given a voice and this survey will contribute to it.




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