Dear Eurocarers Members, Dear Colleagues,
A heartfelt thank you for attending the annual face-to-face meeting of our Research Working Group, held in Vilnius on 9 2025, and the conference “Mapping Informal Care: Research, Policies and Practices in the Baltics and in Europe”, held in Vilnius on 10 October 2025. The events were co-hosted and co-organised in collaboration with the Lithuanian Centre for Social Sciences and the Lithuanian Academy of Sciences.
Below, you will find the presentations and notes shared during the meeting. As always, our Secretariat (gl@eurocarers.org) is available to assist with any questions or feedback you may have about this event or our activities in general.
Warm regards,
The Eurocarers Team
Meeting Documents
- Agenda ERWG 9 October
- Agenda Conference 10 October
- List of participants 9 October
- List of participants 10 October
Presentations
Day 1 – 9 October 2025
Session 1: The ethics of involving carers’ organisations in research. Next steps towards the adoption of Eurocarers’ guidelines for fair involvement of carers’ organisations in research (Board-mandated initiative)
- Presentation by Giulia Lanfredi (Eurocarers): “Eurocarers guiding principles for fair involvement of carers’ organisations in research. Discussion on the first draft”
- Discussion notes
Session 2: Advancement in support solutions for carers and for more carer
friendly systems
- Presentation by Simona Hvalič Touzery (University of Ljubljana, Faculty of Social Sciences, Slovenia): “Telecare in the Informal Care of Older Adults: Insights from Slovenia”
- Presentation by Deborah Lambotte (HOGENT University of Applied Sciences and Arts, Belgium): “Research on informal care friendly hospitals”
- Presentation by Jolita Juneviciene (Lithuanian Centre for Social Sciences, Lithuania): “Bridging the Gap: Connections Between Informal and Formal Home Care for the Elderly in Lithuania“
Session 3: Research on the state of informal care and its policy implications – part 1
- Presentation by Selma Kadi (European Centre for Social Welfare Policy and Research, Austria): “Developing informal carer policies in well-developed LTC systems: future challenges across four EU member states”
- Presentation by Amaia Calderon Larrañaga (Karolinska Institutet, in collaboration with The Swedish Family Care Competence Centre, Sweden): “Caring in later life: Insights from a nationwide survey of 31,000 older Swedes”
- Presentation by Kate Hamblin (University of Sheffield, United Kingdom): “Informal Care in the UK: Research, policy and impact”
Session 4: Research on the state of informal care and its policy implications – part 2
- Presentation by Joanne Murphy (Family Carers Ireland, Ireland): “Findings from the third ‘State of Caring’ survey (2024)”
- Presentation by Stavros Terzakis (Greek Carers Network – ΕPIONI, Greece): “Personal Assistant (PA) for Persons with Disabilities: insights from the Greek support program”.
Session 5: Social norms and cultural context: how informal care is evolving
- Presentation by Rebecca Graziosi (INRCA, Italy): “Promoting inclusive interventions to address the care needs of LGBTQAI+ older adults: evidence from a systematic review of reviews”
Session 6: Strengthening mental health and wellbeing of carers
- Presentation by Melanie Crew (Carers UK, United Kingdom): “The opportunity costs of providing unpaid care”
- Presentation by Andreas Hoff (GAT Institute, Zittau/Goerlitz University of Applied Sciences, Germany): “Well Care: Improving resilience of carers in Europe”
Session 7: Improving care outcomes and quality
- Presentation by Emma Miller (Coalition Of Carers In Scotland, United Kingdom): “Revisiting outcomes for carers: a view from Scotland”
- Presentation by Nida Abed (University Miguel Hernández, Spain): “BetterCare COST Action: an overview”
Day 2 – 10 October 2025
Informal care in Latvia: insights from research, policy and practice
- Presentation by Ms Jana Muižniece (AC Consultations Ltd): “Challenges of Informal Care in Latvia: Research Results”
- Presentation by Mrs Liena Petersone and Ms Daniela Macukane Petersone (Social Integration State Agency): “Competency Development Program for Informal Caregivers”
Informal care in Lithuania: insights from research, policy and practice
- Presentation by Dr. Irma Mačkinė (Vilnius University): “From Overlooked Kin to Key Support: Siblings in the Context of Migration and Informal Care”
- Presentation by Dr. Dovilė Daugėlienė (Vytautas Magnus University): “The situation of informal caregivers in Lithuania: insights from the YoungCare project”
- Presentation by Ms Ieva Petkutė (President of Dementia Lithuania, and researcher at Lithuanian Sports University): “The subjective well-being and lived care experiences of family caregivers of people living with dementia”
Informal care in Estonia: insights from research, policy and practice
- Presentation by Dr. Mare Ainsaar (University of Tartu): “Care in Estonia – particularity of well-being of men and women at home with children”
EU funding opportunities: insights from Horizon Europe and the European Research Council
- Presentation by Ms Gabrielė Čepeliauskaitė (Research Council of Lithuania, National Contact Point for the European Research Council) and Ms Sigita Auvertin Bagdonienė (Research Council of Lithuania, National Contact Point for Horizon Europe) on Horizon Europe available here.
Last Updated on October 14, 2025
