Eurocarers is conducting this survey as part of the Carer-Led Organisations Development (CLOD) Programme to better understand the presence, capacities, challenges and needs of organisations, groups and individuals supporting or representing informal carers across Europe.
An informal carer is a person who provides usually unpaid care or support to a family member, friend or another person who needs assistance because of illness, disability, age-related needs or other long-term support needs.
Carer-led organisations are organisations or groups that support or advocate for informal carers and in which carers play a meaningful role in membership, activities, leadership or decision-making.
The survey aims to identify opportunities to strengthen carer-led organisations, improve the representation and collective voice of informal carers, and inform future capacity-building, networking and advocacy initiatives.
The questionnaire is intended for representatives of formal organisations, grassroots groups and networks, individual informal carers, and other stakeholders involved in informal care.
The survey is available in several languages, feel free to use the one that suits you best.
Last Updated on October 28, 2026
